Many of you have already heard, but the Dr. called me yesterday and verified that I do indeed have Hemochromatosis. This means that ASAP I will be giving blood weekly for a year to alleviate the iron from depositing into my liver and heart. From there, we will see how often I need to go for the rest of my life. I am not thrilled. I am so happy it is something that was caught when it was, apparently, I have had it all of my life. If it would have gone any longer, I could have had cancer, heart disease or cirrhosis of the liver. I rejoice in that fact. I rejoice that I am growing to see that my body is the Lord's and I have to rely on Him. I have to be honest though, I feel very lonely right now. There is something about having a diagnosis of a disease. A rare disease. A genetic malfunction. I drove home from HEB yesterday, with all of my organic food and flaxseed oil and acidophilus, and I felt so small. I cannot really explain it. And I know, I know, I know it could be sooooo much worse. I don't need meds or surgery--thank you, Lord! But still, my body is hurting and will be put through a new set of events. I keep thinking this cannot be me, not the health and physical fitness freak. And already? At 26. What about the unknown? What about pregnancy? What if my body can't handle merely giving blood so often. So, I did not go to anything I had planned this weekend. Brent is out of town. I was supposed to spend the weekend with Elsie and then go to a beloved friend's wedding. But I could not make myself go. I felt I needed to be alone this weekend and I think I am in mourning. I am mourning the sheer fact that it is what it is. I feel peace, don't get me wrong, even now, I am listening to Watermark sing "Knees to the Earth" and I can praise the Lord more than I ever have. Still, I needed to be alone to process it. To be in solitude and meditate on who God is to me. And who I am to Him. This mourning will pass. The sadness will pass. I am going to let it run it's course and go full force. I still believe I will be healed one day. I proclaim that. I ask you all to join me in that. Pray for me even as I give blood. Something I am not fearful of (despite Rhonda), but do not look forward to either. Thank you all for asking about me and praying. I am going to be great. I am at peace and actually look forward to growing closer to the Lord and seeing how He will use me in this whole thing. I don't plan on turning this blog into a "Poor, hemochromatosis girl" blog. I think my life will still maintain a decent bit normalcy--if it ever had any to begin with :) However, this has been on my mind, so I write to get it out of my mind. Maybe it is too vulnerable. I don't know. Anywho I do plan to blog about the everyday things and Lord knows I wish American Idol was still going on, that was an instant cure to the ol' writer's block! I want to leave you with this verse that my friend Liz sent me for encouragement. It brought tears to my eyes because it was exactly the way I am feeling.
"Hear my cry, O God;
Give heed to my prayer.
From the end of the earth I call to you when my heart is faint (or even when I actually faint! :) )
Lead me to the rock that is higher than I.
For you have been a refuge for me,
A tower of strength against the enemy.
Let me dwell in Your tent forever;
Let me take refuge in the shelter of Your wings."
Psalm 61:1-4
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12 comments:
I'm so sorry to hear about that. I will continue to pray for you!
Dear Nicki,We will all be praying for you...I know God will restore your joy and your health...remember it is ok to be sad...Jesus wept...everything is going to be ok. Thank you for letting us all intercede for you!!!!
Don't be ashamed of how you are feeling, your honesty and openess are encouraging. I will definetely be praying that God will give you strength and comfort.
Thank you everyone! I am feeling a lot more positively about it this week. I think it is going to be a great thing overall! Especially if I can become iron woman. Looks like I am on the right track for that to happen!
I really like Cody's idea about you becoming like Iron Woman! Made me laugh when I read it! It has to make you feel good to know that the blood they take from you can be used to help other people. That is what I read anyway. I hope that you start to feel better as soon as you start donating!
Cor,
Actually, they can't use my blood. So, I will have to settle for being Iron Woman saving people's lives, but not by giving my blood. Iron Woman will not share her powers.
I'm praying...you really are an encouragement. I appreciate your vulnerability. You wouldn't be normal if you didn't have some sad and scared moments. You have a heart of gold!! Hopefully you will start feeling better (physically and emotionally) soon. I'm praying for that!
L,
Thank you, my darling. You are wonderful and I appreciate your prayers for me! I think we know know that the prayers for one another work, don't we ;)
Its a little know fact, but Chuck Norris once had too much iron in his blood, thats why they call him Chuck "Magnet" Norris.
Oh yes...we do! I think we both need to say a prayer for the Mavs tonight, too! ;)
oh nicki...my heart breaks for your "diagnosis"...i know that empty, lonely, feeling and it will pass. i know you hate hearing all the cliches...but it is true: for SOME reason, God has plans for you that you cannot even begin to comprehend. much love and many prayers--continue! keep us updated and vent when you need to.
That's a great story. Waiting for more. meridia hillcrest hospital births Asbestos blogspotcom cancer mesothelioma site
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